How long does Aase syndrome last?
Last updated September 6, 2026.
**Aase syndrome is a lifelong condition, although the anemia associated with it often improves with age.** If you or your child has Aase syndrome, there is no fixed recovery time. It is considered part of Diamond-Blackfan anemia, a condition in which your bone marrow makes too few red blood cells. Your treatment needs depend on anemia severity, other physical differences, and your response to treatment. Keep scheduled blood tests and specialist visits even when you feel well, because improved symptoms do not mean the condition has gone away.
What to do
- **Keep follow-up visits:** Ask your hematologist how often you need blood counts and specialist reviews.
- **Track symptoms:** Tell your care team about new fatigue, weakness, or unusual paleness.
- **Review treatment:** Discuss your blood test results with your specialist before changing prescribed treatment.
- **Discuss movement limits:** Ask your clinician about care for joint stiffness that affects daily activities.
- **Plan ahead:** Ask about genetic counseling if you have a family history and are considering pregnancy.