How is Aicardi syndrome treated?
Last updated September 7, 2026.
**Aicardi syndrome has no cure, but treatment helps control seizures, support development, and manage other health problems.** Your child's care plan depends on their seizure types, developmental needs, vision, and feeding difficulties. A pediatric neurologist selects seizure treatment and adjusts it when seizures continue or side effects occur. Physical, occupational, and speech therapies can support movement, daily activities, and communication. Keep a record of seizures and medication effects, and bring feeding or vision changes to your child's care team.
What to do
- **Coordinate specialist care:** Work with your child's pediatrician and neurologist to review seizures, development, and other health needs.
- **Track seizures:** Record when seizures happen, how long they last, and any medication side effects.
- **Follow medication instructions:** Give seizure medicines exactly as prescribed and discuss changes with your child's neurologist.
- **Support development:** Ask for therapy referrals matched to your child's movement, communication, and daily care needs.
- **Review feeding and vision:** Tell your child's care team about feeding difficulties, constipation, reflux, or changes in vision.
- **Plan for seizures:** Ask your child's neurologist for a written plan explaining rescue treatment and when to call 911.
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