How can you prevent Aarskog syndrome?
Last updated September 6, 2026.
**You cannot prevent Aarskog syndrome through diet, exercise, supplements, or other lifestyle changes.** Aarskog syndrome is a genetic condition, and changes in the FGD1 gene explain some cases. If you have a family history, genetic counseling can help you understand your chance of passing it on. Testing is most informative when your family's gene change is already known, but a negative result does not exclude every case. Before pregnancy, a genetics clinician can explain your testing results and reproductive options.
What to do
- **Review your family history:** Tell your clinician about relatives with Aarskog syndrome or a known FGD1 gene change.
- **Seek genetic counseling:** Ask for a referral before pregnancy if you or your partner has a personal or family history.
- **Bring test reports:** Share any relatives' genetic results with your counselor to help guide testing.
- **Discuss testing limits:** Ask what a positive or negative result would mean for your pregnancy planning.
- **Arrange an evaluation:** Contact your child's clinician if you notice delayed growth or developmental concerns.
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