What helps Aase syndrome?
Last updated September 6, 2026.
**Aase syndrome is helped by specialist treatment for anemia and care for associated bone, joint, or heart problems.** Your treatment depends on your age, blood counts, symptoms, and any associated health problems. Aase syndrome is considered part of Diamond-Blackfan anemia, in which your bone marrow makes too few red blood cells. Your blood specialist may recommend transfusions or prednisone after reviewing its benefits and risks. Keep scheduled blood tests and track changes in your energy, breathing, and activity tolerance.
What to do
- **See a blood specialist:** Work with a hematologist experienced in inherited bone marrow conditions.
- **Keep monitoring appointments:** Follow your specialist's schedule for blood counts and treatment reviews.
- **Review steroid treatment:** Discuss prednisone's benefits and risks with your specialist before starting it.
- **Track symptoms:** Tell your care team about new weakness, paleness, or reduced activity tolerance.
- **Ask about genetic counseling:** Discuss inheritance and pregnancy planning if you have a personal or family history.
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